I’ve now begun work on the first of two wikis which will form the basis of my research project. The project aims to investigate the use of wikis as an online social space/environment for patients and practitioners who wish to share personal experiences of healthcare and medical treatment as they embark or have embarked on their “patient journey”.

Patient Journeys Wiki is a place to document existing patient journeys already available on the web. I’ve added some links to some existing resources that include Alzheimer’s, Parkinson’s, IVF, Cystic Fibrosis and Multiple Sclerosis. If you would like to join this project as a contributor to the wiki or have a link that you feel would add something to this online resource then please get in touch with me.